The last seven months have been a very intense experience for our family as we have adjusted to Caleb’s Type 1 Diabetes diagnosis. It has lead to huge lifestyle changes for all of us.

T1D Looks Like Me

I have struggled to explain and help others to understand what it is like to live with this illness. I have been overwhelmed by how much is involved in managing the illness, how difficult it is to “manage” it, and how it’s impossible to truly control the illness as every day is different.

The first ever narrative film about Type 1 Diabetes. Their description about the film does a great job at capturing what Type 1 Diabetes is and the lifestyle changes that it means …

My son has an “invisible” disease. Type 1 diabetes isn’t something a person wears openly for the world to see, and quite frankly, even if they did, unless you are truly familiar with the disease, you wouldn’t have any idea about how dangerous it is.

Managing Type 1 Diabetes is EasyA normal person’s body has systems in place to regulate glucose levels. A person with type 1 diabetes has to manage this on their own, and it’s not easy. There is a small range where a person’s blood sugar levels are safe for a human. When a person’s blood sugar level is low, they are dying. Yes, that’s right. I’m not exaggerating, they are dying. When a person’s blood sugar level is high, their organs are breaking down at a molecular level- that means their insides are being destroyed.

Well then, just manage those levels, right? It’s that easy, right? I wish. The variables for maintaining a good blood sugar level can be as difficult as finding a needle in a haystack. There are so many factors that can affect glucose levels; weather, hormones, pain, physical activity, medications, alcohol, hydration, sleep, food, stress and much more. Let’s just look at stress for a moment. How many of you deal with stress daily? Now imagine if that ordinary stress wreaked havoc with your body and mood every day?

And speaking of stress. The stress of managing diabetes weighs on a person. Just going to bed and wondering whether you’re going to wake up at all. Yes, there are people who die in their sleep because their blood sugar goes so low, they never come to. I know that I go to bed with this thought every day, and have done so for the last eight years.

Remember, there are people living with struggles that you don’t know about because the crosses they have to bear are invisible.

The Film is called DxOne, and their Facebook page is here.

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One Response to Adjusting to Life as a DOD (Dad Of a Diabetic)

  1. Dominic says:

    I wish you all the best. One thing to think about is the mental health part. Stress and depression for the patient and the family can be a “silent” issue as well. Social workers can help.

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